Philadelphia, PA, September 10, 2007 – TrialCheck®, the nation’s
premier searchable database for cancer clinical trials, debuts today at the
American Cancer Society web site (www.cancer.org
)and its 24-hour National Cancer Information Center (1-800-ACS-2345), giving
millions of cancer patients quick access to clinical trial matches for their
diagnosis and locale.
Developed by the Coalition of Cancer Cooperative Groups in 2001,
TrialCheck uses a patientcentered approach to online clinical trials matching.
Its disease-specific search filter guides users through a short query on a
patient’s type of cancer, treatment history and current condition (four to six
questions). Its location-driven filter displays the search results by proximity
to the user’s zip code. As a result, users (patients and physicians) have
tailored information on the thousands of nationally registered cancer clinical
trials open and seeking patients in the United States.
The new TrialCheck service will give visitors to cancer.org the
ability to pinpoint trials at specific providers near their desired locations.
TrialCheck uses a simple, short questionnaire to provide accurate results and
help patients identify appropriate clinical trials for their needs.
TrialCheck will also enable cancer.org users to link to trained
clinical trial specialists at the Society’s National Cancer Information Center
directly from their TrialCheck search. Shared access enables Web visitors to
get immediate assistance with their search, as well as guidance interpreting
search results and help verifying hospitals and clinical practices where
clinical trials are available.
All users receive a recap of their TrialCheck
search in writing, sent via mail from the American Cancer Society. This packet
of information, which includes summaries of protocols returned in search
results, takes a critical step, facilitating communication between the patient
and his or her physician to confirm whether the protocols that appeared in the
search results are an appropriate treatment option. Patients can also save
their searches and send them via email to themselves or others for their
Bridging the Clinical Trial Knowledge Gap
These combined features allow users to continue to bridge the
gap between patients seeking treatment options through clinical trials and the
researchers who provide those clinical trials.
Although cancer clinical trials offer access to state-of-the-art
care – and the potential for the development of more effective cancer
treatments – the vast majority of cancer patients are unaware that clinical
trials are a treatment option. Yet, data from a study of cancer survivors
conducted by the Coalition and Northwestern University found that most patients
(87 percent) would have considered enrolling had they known about the option at
the time of their diagnosis. The findings also showed that most (84 percent) of
those survivors who did enroll in a clinical trial were encouraged by their
physician to participate.
"The combined power of two leading cancer organizations can help
bridge these serious gaps in cancer clinical trial awareness and
participation," said Robert L. Comis, M.D., Coalition president and chairman.
"The data clearly underscore that it is crucial that cancer patients – and
their physicians – are aware of clinical trial availability. With this new
TrialCheck service, we can work with the American Cancer Society to reverse
these enrollment trends and give patients access to information that can inform
and facilitate discussion with their physician."
"This new service will help the American Cancer Society put
clinical trial information into the hands of patients," said Richard. C.
Wender, M.D., national volunteer president of the American Cancer Society.
"Making the information easy to access and providing it in a way that supports
the discussion between patients and their physicians about clinical trials
provides a wonderful tool to help link patients with the right trial for them.
As a result, we'll accelerate our understanding of cancer."
Updating Trial Locations in Real Time
Real-time updates are a distinguishing feature of TrialCheck
that will also benefit users. In 2006, the Coalition introduced a technology
enhancement that imports location information upon receipt for Cooperative
Group trials. Participating oncology practices and hospitals appear in a trial
record in real time as they are federally approved to participate in that
study; conversely, locations are removed in real time from the database record
when the study is closed or no longer available at that site. With outdated
location information a common problem among trial databases, real-time updates
are a popular feature among TrialCheck users. While real-time updates currently
apply only to Cooperative Group studies, the proprietary informatics platform
developed for real-time updates is a possible model for the Coalition to
replicate with other types of studies in the future (pharmaceutical and biotech
companies, cancer centers offering their studies in multiple locations, and
other government-sponsored studies).
Tracking Clinical Trial Trends
An innovative TrialCheck feature, TrialTracker, will capture a
vivid picture of patients’ clinical trial experiences, determining whether they
took steps and ultimately were enrolled into a trial. For the first time, the
American Cancer Society can gain an expansive view of cancer clinical trial
activity generated from its services and patient support initiatives, tracking
the experiences of patients individually and collectively. In addition to
activity around the thousands of nationally registered cancer clinical trials
open and seeking patients in the United States, the TrialTracker service will
provide comprehensive reporting on demographics and insights into patient
barriers to enrollment (i.e., physician unfamiliar with trials, location,
personal concerns, etc.) that can inform the development of new clinical trial
About the Coalition of Cancer Cooperative Groups
originating site for TrialCheck
The Coalition of Cancer Cooperative Groups is a nonprofit charitable
organization whose mission is to improve the quality of life and survival of
cancer patients by increasing participation in cancer clinical trials.